|
Welcome to the Team Meghan fundraising page! My name is Meghan McCarty. I am 4 years old.
In 2006, I was diagnosed with Angelman Syndrome. Angelman Syndrome is a very rare genetic disorder for which there is currently no cure. The annual walk-a-thon is the primary fundraiser for the Angelman Syndrome Foundation ("ASF") and the main mechanism through which you can support the many exciting developments in the research world related to Angelman Syndrome. You can learn more about Angelman Syndrome and the ASF at www.angelman.org.
I am really looking forward to this year's walk-a-thon. Last year, through the incredible generosity of many of you, Team Meghan raised close to $70,000 for the ASF. This money became part of the nearly $1 million in grants issued by ASF in the past year to support research into potential treatments and an ultimate cure for Angelman Syndrome. My dad was elected to the board of directors of ASF and he tells me that there are many exciting research opportunities that will change the lives of all of us who are touched by Angelman Syndrome. My mom and dad heard lots about it when they went to their first national conference (sponsored by the ASF) this past summer.
So, this year, I hope you will help me reach my very ambitious goal of $90,000. I also hope many of you will join me at the walk (see details below). Last year, I was thrilled to have over 50 friends and family members walk with me!
In the year since the last walk-a-thon, I have continued to learn and develop. My physical health is excellent and my parents tell me I am a bundle of constant energy and happiness. I have lots of friends and great teachers and therapists that I often see. I go to a special pre-school program at the local school 4 days a week. I also started a new ABA therapy program at my house 5 days a week. I get to visit my many friends at Easter Seals for Occupational Therapy (I have been going to Easter Seals for 4 years) and I also have private speech therapy.
When I am not busy with my educational and developmental endeavors, I love playing with my 2 older brothers (Brian & Jack), exploring the neighborhood on one of my many wheeled vehicles, scavenging around the house looking for treats (marshmallows are my favorite), swimming, going to the park, playing with balloons and many other things that most 4 year olds enjoy.
While I know I will always face special challenges in my life and will always need a special level of assistance, I know I am very fortunate to have so many loving friends and family in my life.
Your donation helps ensure a brighter future for me and for all those who are touched by Angelman Syndrome. Donating through this site is simple, fast and totally secure.
If you would prefer to make your donation via check, simply send a check payable to the Angelman Syndrome Foundation to my Dad - Tim McCarty, 219 E. 8th Street, Hinsdale, IL 60521. He will make sure it gets to ASF.
The walk is May 17 at 9:30 (registration opens at 8:00). It is in Naperville, beginning at the Word of Life Lutheran Church - 879 Tudor Road, Naperville, IL. If you are planning on coming to the walk, please call or send my parents an email.
Thank you so much for your generosity. It means a great deal to everyone in our family.
Love,
Meghan
|