Want to raise money?

Learn more

YES WE CAN!
RAISE $100,000 FOR ARPKD/CHF RESEARCH!

The best research is specific to the disease and should lead to improved patient care.

Not long ago, most professionals considered this a hopeless condition, universally fatal. Our efforts began by supporting families, followed by global newsletters that reported with accuracy and hope. This condition is not fatal for everyone! As well, anyone who has ARPKD, also has Congenital Hepatic Fibrosis.

Founding board members had a clear vision more could be done for this two organ disease. The ARPKD/CHF Alliance began its work in 2001. It was the start of many firsts, including the generation of the largest research study to date:

Clinical Investigations into ARPKD and CHF.

In 2008 and 2009, we supported research that was very specific to our disease. The University of Pennsylvania identified the fibroblast cell population responsible for fibrosis in CHF! This has generated great promise for future applications and created collaborations with multiple researchers to further investigate. The ARPKD/CHF Alliance uses NIH Gold Standards when evaluating research and would like to continue funding research.

This year, in addition to our annual fund raising campaign, we will ask those supporters of the Alliance to empower themselves with an online page that can be personalized with a story and pictures, to send family and friends, asking for their support. Comments can be made and progress seen. These friends can also create an online page if they choose.

SEE PAST EVENT ON FIRSTGIVING!

If 1000 people raised $100 each, or 500 people raised $200, or 100 people raised $1,000, that is $100,000! This disorder deserves more disease specific research and understanding!

EVERY DOLLAR COUNTS! HELP SUPPORT ARPKD/CHF RESEARCH!

GET STARTED!
• Click the "Get Started" button and choose an event (10 to choose from).
• Create your own page and personalize with your story and photo.
• Email your friends, family, and colleagues a link--anyone you think who may help!

Consider including an informative Flyer or Brochure.