National Fragile X Foundation 25th Anniversary
Page Creator: The National Fragile X Foundation
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Dr. Hagerman with Walt and Gene Koelbel
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National Fragile X Foundation National Fragile X Foundation

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Provides toll-free and email support and promotes education, awareness, treatment and research. Serves families affected by Fragile X and the professionals who work with them....

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Fundraising target: $25,000
Total raised so far: $26,855.00
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Thank You for Helping the NFXF

Meet the Challenge

With your help, we have officially reached – and exceeded – our goal! Thanks to your support, the NFXF will now receive a generous challenge grant from Gene and Walt Koelbel for an additional $25,000. This $50,000 for the NFXF was made possible by all of those who donated and told friends and family about our campaign. Thank you for making our inaugural online campaign such a success.

The Koelbels have been loyal friends of the NFXF since its creation in 1984, when Dr. Randi Hagerman got together in Denver, CO with the Koelbels and just a few others to form the nascent NFXF.

“I congratulate everyone who has hung in there for all these years. I’m so very impressed with the work the foundation does and am pleased I was able to play a small part in the beginning. I delight in reading about all your advances. CONGRATULATIONS!”  - Gene Koelbel

The NFXF thanks the Koelbels again for their generous support.

Thank you FX Resource Center of Missouri!

The FX Resource Center of MO has fulfilled their pledge of $25,000 in honor of the 25th Anniversary, a longtime goal of founder Margaret Israel. The Missouri group pitched in at numerous fundraising activities over the years to make this happen. They also established the Edward Berman FXTAS Fund in 2008, and recently completed the $5,000 pledge for FXTAS research or projects. Thank you so much Missouri for your support.

 “As the parent of an adult with fragile X syndrome, my family and I have benefited from the mission of the National Fragile X Foundation for its entire history. I urge you to please support this 25th Anniversary drive so that families will continue to benefit; now and for the next 25 years!”

Margaret Israel
Honorary Chairwoman, 25th Anniversary Campaign
Founder & Past-President, Fragile X Resource Center of Missouri
Member Board of Directors, National Fragile X Foundation

Offline Donations

Marcia Braden, Ph.D. :   $250

Erikka Jenssen, in honor of Karin Hagerman and Eric Knapp :   $200

Anonymous :   $2,500

Mr. and Mrs. Arthur Davis :   $30

Al and Melissa Blount, in honor of their son, Colin, and with thanks for all the NFXF does for families :   $5,000

Nancy Ide :   $25.00

Edgar and Judy Rainin :   1,530.00

Sharon and Edward Thomas :    $10.00

Troy and Leta Mitchell, in memory of Nadine Kiser :   $100


Online Donors to date: Page 1 of 2     Latest  << | < | > | >>  Earliest  
Display Name Date Amount  Comment
Janet and Rick Perelmut 10/6/2009 $100.00 In honor of Dr. Hagerman and our admiration and indebtedness for her compassion and knowledge. 
Vanessa Johnson 8/28/2009 $50.00 For all the Xtra special individuals, especially J.L. & Sammy 
Dr. William and Mrs Eileen Ertag 8/9/2009 $1,000.00 in support for two wonderful children, Seth & Kim 
David Enterprises Inc. 8/7/2009 $250.00  
Diane Folz 8/7/2009 $200.00 In honor of Brittney and Michael 
Sue Bigge 8/7/2009 $100.00  
CustomInk.com 8/6/2009 $20.00 On Behalf of Lauren Gatewood 
Ken & Patty Osborne 8/2/2009 $75.00 In honor of Bob, Sandy, Christopher, and Daniel Klein  
Van & Beth Wood 8/1/2009 $500.00 Thank you all for all that you do 
Sande & Harris Hollin 7/31/2009 $200.00 In honor of our grandson Matthew 
Mary Neyhard 7/31/2009 $500.00  
Barbara Gerber 7/31/2009 $50.00 In honor of my grandson Michael...one of the lights in my life. 
Sali & Jeff Farber 7/31/2009 $250.00 Randi, Paul and everyone at the National-Thank you for all you do 
The Love-Hall Family 7/31/2009 $25.00 In honor of our beautiful son, Ryan. We love you so much. 
Patterson Family 7/31/2009 $75.00  
Sharon W. Poggi 7/30/2009 $25.00 In honor of Bryce & Jillian L. Ransom 
Ra'Shun L. Conner 7/27/2009 $150.00 In honor of my nephew Bryce...Tee Shun loves you, Stix! 
The Southard Family 7/23/2009 $500.00 We raised this $$ at our Festival for Knowledge Lemonade Stand July 22 Awareness Day Event! 
Mike and Peggy Flanigan 7/23/2009 $100.00 Thanks for all you do for the Fragile X community! 
Alisha and Ted Furst 7/22/2009 $50.00 Keep up the good work 
Ann and Tom Weisse 7/22/2009 $50.00  
Rita Noll 7/22/2009 $25.00 For Alek and Micah 
Faye Mullenax 7/22/2009 $50.00 For Adam & Caden Soper My Greatgrandsons 
Reginald, Michelle and Joshua Threadgill 7/22/2009 $25.00 For our cousin Bryce Ransom 
Eileen Gonzales 7/22/2009 $50.00 Thank you for all your dedication. This is in honor of Stephen and Daniel 
Frances Jeffrey 7/22/2009 $100.00  
Jane and Lehman Black 7/22/2009 $200.00 Thanks for your commitment and compassion! 
Barbara "Bobbie" Anderson 7/22/2009 $50.00 In honor of my wonderful grandson Dillon Michael Kelley with all my love MawMaw 
Anonymous 7/21/2009 $50.00 For our precious Olivia - Love Mommy & Daddy 
Don and Barb Borg 7/21/2009 $500.00 For our dear family 
Dr. and Mrs. W.K. Austin 7/21/2009 $50.00  
Steve, Jamie and Mae Marshall 7/21/2009 $50.00 In honor of our precious Sam 
Ken and Lori Rochow 7/21/2009 $25.00 In honor of Dad, Stephanie, Kyle you have given us so much 
Anita Kowalski 7/21/2009 $25.00 In honor of Caleb, on his 13th birthday! 
John & Mariana Uhrlaub 7/20/2009 $500.00 In honor of our grandson, Caleb, on his 13th birthday.  
Martin & Elizabeth Kalina 7/20/2009 $25.00 In honor of our son, Sean.  
Anonymous 7/20/2009 $50.00 For all the families who have taught me so much 
Anonymous 7/20/2009 $50.00 for Clayton and Cooper Mills 
Ana Pullen 7/19/2009 $50.00 This is for my son Ricky 
Gretchen and Joseph Gorsky 7/19/2009 $50.00 For Christian Clausen 
Delia McGrath 7/18/2009 $500.00 For my beautiful son and niece. 
The Kelley Family 7/18/2009 $50.00 For Brittney 
Minna and Joe Perlow 7/18/2009 $50.00 For the Love of Ross 
The Navarrette Family 7/18/2009 $250.00  
Courtney Griffin 7/18/2009 $50.00 Tee Court loves Bryce 
Anonymous 7/18/2009 $100.00  
The Mowrey Family 7/18/2009 $200.00 For Anna 
rosa and angel vega 7/18/2009 $100.00 To the future of our grandson William 
The Carver Family 7/18/2009 $50.00 For the future of our son Ian 
Anonymous 7/18/2009 $40.00  
Anonymous 7/18/2009 $250.00  
Debby and Doug Lesser 7/18/2009 $200.00 Thanks for all you do for our kids! 
Lauren Gatewood 7/14/2009 $50.00 My Daughter Lauren was seen by Dr Hagerman in May... Randi is wonderful! 
GM Sue 7/10/2009 $25.00 My grandson Matthew has Fragile X -- I am donating in honor of his brother Peter's birthday! 
Mary w/ fragile x resource of Montana 6/30/2009 $100.00 Just don't hide your wings and your halo! You are truly an angel! 
Anonymous 6/30/2009 $25.00 You are both one-of-a-kind 
La. Fragile X Resource Group 6/24/2009 $100.00 You guys are an amazing gift to humanity 
Loretta Watson 6/23/2009 $50.00 Thank you and keep up the good work -- for Margaux & Garrick 
Marlene Sweeney 6/23/2009 $20.00  
The Koren's & Eric Oelgoetz 6/23/2009 $50.00 forever grateful 
Jean and Michael Selinger 6/22/2009 $25.00  
Louisa T. Arnold 6/21/2009 $25.00 Great achievement! 
Jim & Christy Carroll 6/21/2009 $25.00 Thank you so much for your tireless efforts in fragile x research. 
Dr Marie Francoise Croquette 6/20/2009 $100.00 You took on your well deserved free time to support the French families. What a dedication! 
David, Tracy, Alie, Scotty and Matt Hovda 6/18/2009 $100.00 Thank you Hagermans for everything. 
Anonymous 6/18/2009 $30.00 For Jacob Price and family 
Cathy and Ellis Thorwaldson 6/17/2009 $100.00 Thank you for your dedication to helping our families! 
Alan & Karen Adler 6/16/2009 $100.00 Your work is fantastic...thank you! 
Janet Copp 6/15/2009 $50.00 Thank you for your help ! 
Dana and Andrew Cohen 6/15/2009 $100.00 Your work is so deeply appreciated 
Mary Jean Dennis 6/15/2009 $25.00 Big thanks to The Hagermans 
Lynch 6/15/2009 $250.00 Thank you for your continued dedication. 
Suzi and Barry Zamelsky 6/14/2009 $250.00 Honoring our grandson Hayden on his 4th birthday and thanking the Foundation for all you do.  
Judy Schmitt 6/14/2009 $100.00 Love you, Logan McCarty. 
Cindy & Brendan de Gruchy 6/14/2009 $200.00 Looking forward to new effective treatments in the not too distant future. 
Michael & Wanda Griffin 6/13/2009 $100.00 Thank you for all of your hard work 
Nancy Zellers 6/13/2009 $50.00 Congratulations on 25 years! 
Charley and Mindy 6/13/2009 $100.00 We love you Chad 
Bonnie Stroupe 6/13/2009 $25.00 For My Beautiful and Funny Daughter Kristi!  
Norman & Patti Graves 6/13/2009 $125.00 for Zachary Weaver & Alex Ripplinger grandsons 
Michael & Frances Marron 6/13/2009 $100.00 Congratulations on all you have achieved 
Jeanne and Rick Moe 6/13/2009 $50.00 It brings tears to my eyes to just think of what the both of you have done for the FX community. 
Archie Hahn 6/12/2009 $100.00  
sule oztaskin 6/11/2009 $300.00 Hi Randi...Thanks for all the great work you have done.We are very hopeful too . sule &osman&cem&efe 
The Silverman Family 6/10/2009 $500.00 Thanks Randi... Our family is very hopeful!!! Hi from Nathan and Litte Eric 
Ginny 6/10/2009 $50.00 Congratulations this is sent with a lot of prayers for a cure. 
Kari & Pete Espinosa 6/10/2009 $500.00 Keep up the great work! 
Nancy Bloxom 6/10/2009 $200.00 Keep up the good work 
Anonymous 6/10/2009 $25.00  
Anonymous 6/9/2009 $50.00 Thank you for your wonderful work! 
John and Stephanie 6/9/2009 $2,500.00 Thanks to all who do what they do for the cause! 
Fragile X Association of GA 6/9/2009 $250.00 Thanks for your vision 
Katie Donohue 6/8/2009 $500.00 Thank you for your dedication to help our son! 
Marguerite Parrilli 6/7/2009 $50.00 Thanks for all you do! It was such a pleasure meeting you Randi back in 1990. 
Ruth T. Young 6/6/2009 $50.00 Thank you for all the research that you are doing! Happy Anniversary!  
Mike and Marilyn Morgan 6/6/2009 $1,000.00 In honor of our son Dan we say thank you and keep up all the amazing work.  
Carrie Rose 6/6/2009 $100.00 You both have been such a blessing in our lives. 
schwartzberg and Schattners 6/6/2009 $50.00 In loving memory of Martin Schwartzberg 
For the love of AJ Andreassi 6/5/2009 $50.00 Thank you to Dr's Hagerman, Dr. Jeanette Holden, Dr. Lynne Bird, Katie Clapp, Dr. Abbedutto, & more 
The Stebbins Family 6/5/2009 $100.00 Thank you for your timeless commitment. I am hopeful we will find a cure or treatment. 
  Page 1 of 2     Latest  << | < | > | >>  Earliest  
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* Total raised online: $17,210.00
Amount raised offline: $9,645.00
Grand Total: $26,855.00
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